Tag: ME Crash

Studio Diary entries written during periods when my ME/CFS symptoms are particularly bad. Drawings, thoughts and small moments from days spent resting, waiting and hoping to feel better.

  • Mostly being still

    In the midst of this ME crash, I’m mostly being quite still, but yesterday evening George drove me into town for some fish and chips on the seafront. I’m beyond delighted to have discovered that I can eat a few chips without my blood sugar levels spiking!

    Afterwards, I took a few steps from the car to be buffeted by the wind and watch the sun set.

    Lovely.

    A loose black ink drawing across two pages of an open pocket sketchbook, showing the artist's reflection in the passenger-side wing mirror of a car as he sits looking out towards the sea. His face, wearing glasses and a striped beanie, is framed by the sweeping, curved outline of the mirror, with parts of the car loosely sketched around it. Across the top, handwritten text reads, “Watching the big sea after fish and chips.” Further handwritten notes down the right-hand side describe eating fish and chips in the car at South Beach and wondering whether this might become a new habit. The drawing is dated 9-10-26.
  • A 4.00 am pool of light

    I’m reluctantly coming to the conclusion that I’m in the midst of an ME crash.

    What I’m also seeing is that my 4.00 am drawing habit is actually a little oasis for my foggy brain and uncomfortable body. There is a certain amount of clarity and even some energy as I sit in bed awake in the small hours.

    For weeks now I’ve been waiting for this time to dissolve into a more regular — more acceptable — sleep pattern. But today, as I sit with my tea, drawing and listening to the rain, it feels like a little pool of light to enjoy and cherish.