

Studio Diary entries written during periods when my ME/CFS symptoms are particularly bad. Drawings, thoughts and small moments from days spent resting, waiting and hoping to feel better.
In the midst of this ME crash, I’m mostly being quite still, but yesterday evening George drove me into town for some fish and chips on the seafront. I’m beyond delighted to have discovered that I can eat a few chips without my blood sugar levels spiking!
Afterwards, I took a few steps from the car to be buffeted by the wind and watch the sun set.
Lovely.


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I’m reluctantly coming to the conclusion that I’m in the midst of an ME crash.
What I’m also seeing is that my 4.00 am drawing habit is actually a little oasis for my foggy brain and uncomfortable body. There is a certain amount of clarity and even some energy as I sit in bed awake in the small hours.
For weeks now I’ve been waiting for this time to dissolve into a more regular — more acceptable — sleep pattern. But today, as I sit with my tea, drawing and listening to the rain, it feels like a little pool of light to enjoy and cherish.
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